Epilepsy Archives | MedicAlert Foundation The Real Medical ID, MedicAlert medical IDs provide protection in an emergency. Backed by our 24/7 emergency services, genuine MedicAlert IDs are globally recognized by first responders and medical professionals. Thu, 29 Feb 2024 16:13:57 +0000 en-US hourly 1 https://blog.medicalert.org/wp-content/uploads/2022/01/cropped-favicon-32x32-1-32x32.png Epilepsy Archives | MedicAlert Foundation 32 32 192520198 Living with Cerebral Palsy and Seizure Disorder /member-stories/cerebral-palsy-seizure-disorder/ /member-stories/cerebral-palsy-seizure-disorder/#respond Fri, 26 Jan 2024 23:40:33 +0000 https://blog.medicalert.org/?post_type=stories&p=27496 Living with Cerebral Palsy and Seizure Disorder: How MedicAlert Saved My Life When someone has chronic medical conditions and lives alone, it can be scary to think about how often they may be at risk for a medical emergency. For long-time MedicAlert member Lynn, that fear has been eliminated by knowing that help is only […]

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Living with Cerebral Palsy and Seizure Disorder: How MedicAlert Saved My Life

When someone has chronic medical conditions and lives alone, it can be scary to think about how often they may be at risk for a medical emergency.

For long-time MedicAlert member Lynn, that fear has been eliminated by knowing that help is only a call away, especially living with cerebral palsy and a seizure disorder. In Lynn’s case, her MedicAlert ID gives her the peace of mind to work full time and maintain a full and active life.

Women wearing the classic medical ID holding a coffee cup with heart shaped foam

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About Cerebral Palsy

Learn more about this condition on the medical conditions page.
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Other Conditions

Read about other conditions that our MedicAlert members live with.
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A busy lifestyle with cerebral palsy and seizure disorder

Lynn shares that she has been a proud MedicAlert member since 1997, when she took a full-time position as a Senior Telephone Operator. Because of her history of cerebral palsy and a seizure disorder, she decided to join the MedicAlert Foundation to protect herself in case of a medical emergency. “Using MedicAlert has been a great experience for me— especially living alone,” Lynn says.

Because she wears her medical ID bracelet to notify first responders of her diagnoses, she is confident that MedicAlert can be her voice in an emergency. Without it, “By the time a family member or a neighbor realizes something is wrong, it could be catastrophic or even deadly for someone with medical issues like mine.”   

Despite her medical history, Lynn is determined to lead a busy lifestyle. Even though cerebral palsy limits mobility and in some cases independence, she strives to overcome these obstacles in her everyday life. She has owned her own home for 28 years and drives her own car to and from a Park & Ride lot to commute to work and run errands via public transit. “I enjoy watching movies and going out with friends when I am not working at my job,” she explains. “If our schedules don’t allow us to, I will go solo because I never miss out on a good time!”

Lynn adds, “I also enjoy listening to music every day, and I win contests off of the local radio stations in the area. I have even been lucky enough to win free money!”

How MedicAlert saves lives in a medical crisis

Since receiving her first MedicAlert bracelet, Lynn states it has saved her life numerous times. Her customized medical ID provides first responders with her history of cerebral palsy, seizure disorder, and deep vein thrombosis. It also shares any other details important to her care, such as medications she takes and her allergies to baclofen and penicillin.

Facts About
Cerebral Palsy

Cerebral Palsy is caused by brain damage that occurs before, during, or shortly after birth.

Muscle problems can be mild (stiff or clumsy) or severe (unable to walk or move certain muscles at all).

Treatment can help relieve the symptoms of cerebral palsy.

Source: CDC.Gov

It was the red MedicAlert emblem on my seatbelt that alerted the police and EMS about my medical condition and helped them to notify my doctor and family.

“I had a seizure in 2007 after coming home from a stressful day at work and it was the MedicAlert bracelet that assisted me in relaying critical information to the medical personnel for the EMS team and hospital staff,” she says. “I also had it save me after a medication interaction when I wasn’t feeling well at 1:30 in the morning in August of 2022 and again in September of 2022 for the same reason.”  

Along with her medical ID bracelet, Lynn uses a MedicAlert seatbelt ID holder in her vehicle. “In November 2022, I was in a car accident,” Lynn recalls. “It was the red MedicAlert emblem on my seatbelt that alerted the police and EMS about my medical condition and helped them to notify my doctor and family.”

Lynn shares, “I am extremely proud to be a MedicAlert member and donor to assist others like me— but who may be less fortunate— to afford the same peace of mind: that when they are alone or out with others who are not aware of their medical conditions, they will get the assistance they need in a medical crisis. THANK YOU!” 

Read more about MedicAlert members

Alzheimer’s & Caregiving

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Living with Epilepsy: From Ad Exec to Pageant Queen /member-stories/epilepsy-pageant-queen/ /member-stories/epilepsy-pageant-queen/#respond Sun, 31 Dec 2023 15:17:42 +0000 https://blog.medicalert.org/?post_type=stories&p=19242 “Living with epilepsy, I feel more safe, more calm with MedicAlert,” says Alexandra Debourcy. Find out why, and follow her epilepsy journey.

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Living with Epilepsy: From Ad Exec to Pageant Queen

Looking at Alexandra DeBourcy, you would never guess that she has a single health concern, especially anything serious. Unless you happened to see the MedicAlert ID on her wrist, you wouldn’t know that she’s been living with epilepsy since she was 5 years old.

You would never know the 34-year-old former advertising executive once woke up from a seizure unable to remember the name of the current president. Her teeth may look perfect, but that’s because the pageant winner broke her natural set in a fall during another seizure. 

Since the age of 5, Alexandra has been tackling the many different challenges of living with epilepsy.

Want to learn more?

About Epilepsy

Learn more about this condition on the medical conditions page.
Read More >

Other Conditions

Read about other conditions that our MedicAlert members live with.
Read More >

A chronic neurological disorder, that affects people of all ages.

Also known as a “seizure disorder,” epilepsy is a chronic neurological disorder that affects people at any age. The main symptom is unpredictable seizures. A seizure is a sudden, temporary surge of electrical activity in the brain that can affect a person’s appearance or behavior. The severity of the seizures differs from person to person, and not everyone has the same symptoms.

Alexandra’s parents and teachers first noticed a problem when they saw she was having muscle tics and involuntary movements. After being diagnosed with epilepsy, Alexandra started medication to control the seizures. Eventually, she no longer needed the treatment. Around age 12, however, she had several grand mal seizures at school, and doctors put her back on medication.

Because epilepsy isn’t widely understood, and every person’s condition is different, it can take time for someone to understand their individual triggers and find the right treatment. Many people with epilepsy try out a lot of different drugs and treatments before finding something that works.

Despite taking medication, Alexandra experienced breakthrough seizures throughout her twenties that made life a lot more complicated. Her condition did not get much compassion in the competitive, high-performance world of New York advertising.

I feel more safe, more calm with MedicAlert,

Navigating the corporate world with epilepsy.

“I definitely felt targeted because of my epilepsy,” Alexandra says. “I was kind of labeled ‘the weak one.’”

She learned to identify what was most likely to trigger her seizures, but her work environment kept presenting challenges. For example, a lack of sleep may contribute to her seizures, but she was scheduled to launch a new client website at midnight on a Sunday, and then expected to be at the office the next morning. Alcohol use was another potential trigger for seizures. Yet the company assigned her to handle an account for Scotch whiskey, which required her to sample the product with clients.

“The corporate setting can be very hard without someone to have your back,” she says.

The uncontrolled epilepsy, combined with a negative workplace, eventually prompted Alexandra to leave the corporate world. She used her time to look for ways to tell her story and promote epilepsy awareness. She reached out to the local chapter of the Epilepsy Foundation and offered to help. Grateful to find someone willing to share her experiences, the foundation connected her with speaking opportunities.

There was really no one talking about it, and I was willing to talk about it, and I had time on my hands,” Alexandra explains. “The more I talked about it, the more opportunities came my way.”

Becoming a beauty queen.

Most people with epilepsy are hesitant to discuss their condition openly, concerned about how people will react or treat them, she says. Children with the disorder may become a target for bullying. People who do not understand epilepsy may have misconceptions that can shut out those living with the disorder.

Alexandra pushed back against the stigma and misunderstandings. She blogged about her experiences for the Metro New York chapter of the Epilepsy Foundation. She hosted community events, spoke to the Junior League of New York, and starred in commercials for the Epilepsy Foundation. For a new challenge, she entered, and won, the Mrs. NYC pageant. She was able to use the event as an opportunity to help raise epilepsy awareness.

Mentoring children with epilepsy and helping the next generation.

Although unable to have children because of the medications she takes, Alexandra and her husband hope to adopt someday. In the meantime, she helps mentor children with epilepsy, including one girl in Missouri for whom Alexandra is a kind of “Secret Santa.” 

Facts About
Epilepsy

3.4 million people in the United States have epilepsy: 3 million adults and 470,000 children.

50 million people worldwide have epilepsy.

Anyone can develop epilepsy. Seizures can start for people older 65 as often as they do in young children.

Grateful that she has been so open with her experiences and willing to connect with people, parents of children living with epilepsy have reached out to Alexandra from across the United States.

After leaving the corporate world, Alexandra combined her interest in fashion and science to pursue a new career as a licensed gemologist. Her love of jewelry has given her a special appreciation for the simple MedicAlert bracelet she wears on her wrist.

A unique fashion statement with a lifesaving benefit.

“I love it because people can see it, but it still blends in,” she says.“

It has been about 5 years since Alexandra last experienced a seizure, thanks to a variety of medications and understanding her personal triggers. She could get her driver’s license because she has been seizure-free for at least six months. She chooses not to drive, however, because she’s seen enough “on/off periods” that she would rather not risk it. Even now, she occasionally wakes up in fear, momentarily wondering where she is and if the seizures are back.

“Even when the seizures go away, life with epilepsy is never really ‘normal’,” she says. That’s why she is glad to wear her MedicAlert ID, giving her peace of mind that first responders know about her critical medical needs in case the seizures return.

“I feel more safe, more calm with MedicAlert,” she says. “It’s like a lifeline for me.”

Read more about MedicAlert members

Alzheimer’s & Caregiving

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Learning to Manage Epilepsy /member-stories/bruno-manage-epilepsy/ Mon, 25 Dec 2023 12:00:08 +0000 https://blog.medicalert.org/?post_type=stories&p=21889 Diagnosed at the age of 10, Bruno's been battling his condition for over 30 years. And as you can imagine, living with a chronic medical condition at such an early age, he has overcome many obstacles throughout his life. From managing epilepsy as a child, teenager and young adult, Bruno has faced adversity with strength

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Learning to Manage Epilepsy

According to MedicAlert partner the Epilepsy Foundation, 3.4 million people in the United States live with and must learn to manage epilepsy. 1 in 26 people will develop epilepsy at some point in their lifetime. And 1 in 3 people with epilepsy live with uncontrollable seizures because there is no available treatment that works for them. 

However, people with this diagnosis can continue to live a full and active life, as you’ll learn in our story about Bruno, how he is managing epilepsy and his personal experience with the condition.

A 30-year journey with epilepsy

Meet our member, Bruno. Diagnosed with epilepsy at the age of 10, he’s been battling his condition for over 30 years. And as you can imagine, he has overcome many obstacles throughout his life after living with a chronic medical condition from such an early age. While managing epilepsy as a child, teenager and young adult, Bruno has faced adversity with strength and integrity.

Living with epilepsy hasn’t stopped Bruno from living a full life, largely in part to his supportive wife and family. And, more recently, he’s added the support and protection of MedicAlert. As a MedicAlert member since 2018, Bruno relies on our 24/7 emergency response and contact notification services if he’s ever faced with an emergency.

I wear a MedicAlert ID bracelet every day to make the people around me aware of my epilepsy condition. When a seizure occurs, they understand what to expect and who to call in times of need,” he says.

I wear a MedicAlert ID bracelet every day to make the people around me aware of my epilepsy condition. When a seizure occurs, they understand what to expect and who to call in times of need.

Building awareness on how to manage epilepsy

To increase awareness about epilepsy and other seizure disorders, Bruno and his wife Michelle have started a nonprofit – A Hero for Epileptics. Their mission is to raise awareness about epilepsy and work to increase funding for research to find a cure. Their focus is on giving teens and young adults with epilepsy the courage to live better every day.

When they’re not educating the masses or raising funds to support epilepsy research, the duo hosts a thriving podcast that supports the epileptic community. The topics include managing everyday life while living with epilepsy, health and wellness, seizure triggers, and so much more.

MedicAlert Foundation recently had the pleasure of being guests on their podcast, and we learned more about Bruno, his life with epilepsy, his recent brain surgery and why MedicAlert matters to him. You can listen to our conversation here. We know, like us, you’ll be inspired by Bruno and his “can-do” approach to life.

What is epilepsy?

With so many people impacted by this condition, what exactly is epilepsy?

Epilepsy is a neurological disorder that affects the nervous system. It is also known as a seizure disorder. Seizures are sudden recurrent episodes of sensory disturbance, loss of consciousness, or convulsions caused by abnormal electrical activity in the brain. Not all seizures are caused by epilepsy. What distinguishes epileptic seizures is that they originate in the brain.

Facts About
Epilepsy

Epilepsy is a disorder of the brain that causes seizures.

Around 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally.

1.2% of the total US population has active epilepsy

Source: CDC.GOV

What are the different types of epilepsy?

There are several different types of epilepsy. The causes of different epilepsies can be complex and sometimes hard to identify. They may include a genetic tendency, a structural change in the brain, or a combination of both.

There are also over forty different kinds of epileptic seizures. Most seizures are short, and many people won’t notice a blank stare or momentary confusion. But other seizures can cause convulsions and result in falls. Some people with epilepsy have multiple types of seizures, or other medical conditions in addition to epilepsy. These factors play a major role in determining both the severity of the person’s condition and the impact it has on his or her life. They also determine what approaches work best to manage a person’s epilepsy.

Strategies to manage epilepsy

Because epilepsy is not a seizure disorder that is triggered by a specific cause like hypoglycemia (low blood sugar) or another medical condition like heart problems, it can be hard to know what might trigger a seizure. 

Although medication can help to reduce the frequency of seizures due to epilepsy, an unprovoked and unexpected seizure is always possible. Living day-to-day with this possibility means that preparation is key. 

Getting enough rest, eating healthy, exercising, taking medication as prescribed, and keeping a seizure diary to help pinpoint possible patterns of seizure activity can help. In the event that a seizure does happen, making sure the people around you know what to do is also important. This is where a MedicAlert ID is helpful, because it can communicate any information related to your epilepsy and medications to first responders or strangers that step in to help.

Want to learn more?

About Epilepsy

Learn more about this condition on the medical conditions page.
Read More >

Other Conditions

Read about other conditions that our MedicAlert members live with.
Read More >

Read more about MedicAlert members

Alzheimer’s & Caregiving

Read More »

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